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Experts warn of potential concerns about genetic privacy

By Shan Juan | China Daily | Updated: 2017-04-28 07:13

In recent years, Chinese insurance companies have enthusiastically embraced genetic testing, mainly as a result of constant reductions in the price of the relevant technology.

Now, many health insurers are partnering with institutions that offer genetic tests by launching insurance packages that offer free tests, either via kits or in designated facilities.

Experts warned that the practice is more about business promotion than health.

"They want to establish a health information pool, specifically focused on the genetic data of clients or potential clients. That information helps with precision targeting of individuals being insured," said an industry insider, who preferred not to be named.

In addition, inappropriate disclosure of details is a growing concern.

A lack of related laws and regulations in China means unscrupulous companies or individuals may sell a person's genetic information for profit without permission, the insider warned.

Moreover, leaked information could lead to discrimination, particularly in areas such as marriage or employment, where people with a clean bill of genetic health will be favored, according to experts. They warned that employers could use the information to decide whether to hire or fire workers.

A 2004 survey by the US Genetics and Public Policy Center found that 92 percent of respondents did not think employers should have access to genetic information, while 80 percent were opposed to insurance companies gaining access to private details.

Luo, from Peking University, said public awareness should be further heightened in China, and urged people to pay more attention to the issue.

"The public should be aware of the privacy concerns about genetic information and people should also be wary of genetic-testing products," he said.

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