The parents of Cheng Junjie, a nine-year-old girl from the northeast province
of Jilin are searching for an effective therapy nationwide for their daughter's
condition; she has black, coarse, hairy skin covering most parts of her body,
including her face, Jilin-based City Evening News reported on August 17.
Cheng Junjie, 9, a girl from the province of
Jilin. Cheng's parents are searching for an effective therapy nationwide
for their daughter's condition; she has black, coarse, hairy skin covering
most parts of her body, including her face, Jilin-based City Evening News
reported. [City Evening News] |
"We just returned from Beijing after searching for treatment in seven
hospitals. Our daughter was diagnosed with 'Furred Nevus". The operation fee
costs more than 100,000 Yuan (US$12, 500).
According to the paper, a representative at a well known hospital
says the condition is genetic and can be treated through an operation, adding that if
she does not go under knife in time, the mutated skin may develop into a deadly
tumor. The paper didn't identify the hospital.
Cheng's parents do not have fixed jobs and have sold everything, including
their house, in the hopes of treating their daughter. Their debt is more than
20,000 Yuan (US$2500) so far, says the paper.
"My daughter has had the condition since she was born in 1998, but there was
less black skin or hair then, " Jun's mother Wang Guiju told the paper.
"The black and hairy skin grew as our daughter grew up. It was rampant when
she was seven," said Jun's parents.
Cheng Junjie, 9, a girl from the province of
Jilin. Cheng's parents are searching for an effective therapy nationwide
for their daughter's condition; she has black, coarse, hairy skin covering
most parts of her body, including her face, Jilin-based City Evening News
reported. [City Evening News] |
Wang and her husband Cheng Haijun had traveled to local areas of Baishan,
Tonghua and Changchun before their Beijing tour to solicit therapy, but doctors
were not able to identify the strange condition, according to the paper.
Someone told them that the disease might be a mutation of their daughter's
birthmark but without telling them how to treat on their daughter, the paper
says without elaborating.
Cheng's condition deteriorated this April when the muscle on her left arm
withered and she endured sharp pain and pruritus the paper says.
"I've damaged my eyes from crying so much since my daughter was born. With
her situation worsening, it's hard for me to fall asleep. It breaks my heart to
see her in such pain. What I can do is cuddle and massage her in an attempt to
relieve her pain," Wang told the paper, in tears.
Cheng has no friends because of her condition and always wears long sleeves
when going outside, Wang told the paper. "She has to bear discrimination and
stares from her classmates who all think she is infectious," Wang says. "My
daughter dreams one day her arm will be as white as a bed sheet."
Anyone who has any information concerning Jun's condition can call:
0431-960011 or 0431-8990594, or email cswb@vip.sohu.com
